3-interview-transcripts-from-the-fibro-summit.pdf

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Enjoy these 3 expert talk transcripts
from The Fibro Summit!
IN THIS ISSUE
FEATURED PRESENTATIONS
Enjoy learning from these
introductory expert talk
transcripts pulled from The
Fibro Summit!
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be sure to sign up to access
Summit, you can access the these interviews!)
video interviews of these
talks below:
GUEST EXPERTS
Treatments for Fibro Pain
with Genevra Liptan, MD
Click here to watch this interview!
Role of Developmental Trauma
in Fibromyalgia
with Niki Gratrix,
BA, Dip ION, NANP
Click here to watch this interview!
Stress, Adrenal Fatigue and the
Catalyst for Disease
with Tiffany
Caplan, DC, CFMP, BCIM, IFMCP
Click here to watch this interview!
We’re happy that you’re taking time to
learn about living a healthier and happier
life, and we hope you’ll make us a regular
part of that journey!
From the entire Fibro Summit team, thank
you for downloading these transcripts -- we
hope you learn a lot from them!
1
Treatments for Fibro Pain
Genevra Liptan, MD
Dr. Murphree:
Hi, welcome. This is Dr. Rodger
Murphree, yourfibrodoctor.com, author of
Treating & Beating Fibromyalgia and Chronic Fatigue
Syndrome.
Thank you for joining me for the
Fibro
Summit.
Delighted to have you here with us. We’re
going to be sharing some valuable information to
help you in your quest to feel good again.
A special guest here today, someone I followed
for a while, a big fan, and this is Dr. Genevra
Liptan. She’s a graduate of Tufts University School
of Medicine, board-certified in internal medicine,
and also board certified in functional medicine, a
holistic approach of integrative and conventional
medicine or Western medicine. After developing
fibromyalgia herself as a medical student, Dr.
Liptan spent many years using herself as a Guinea
pig. I like that. Defined successful treatments
that have fine-tuned her approach in treating
thousands of patients with fibromyalgia. She is
one of a few, and there is only a few of us who
have a focus, a specialty in fibromyalgia. That’s
why we’re so focused.
She’s the director of The Frida Center for
Fibromyalgia in Portland, Oregon. She’s the
author of three books on fibromyalgia: The
Fibromyalgia or
The FibroManual,
excuse me.
The
FibroManual: A Complete Fibromyalgia Treatment
Guide for You and Your Doctor, The Fibro Food
Formula: A Real-Life Approach to Fibromyalgia Relief,
and the third book,
Figuring Out Fibromyalgia:
Current Science and the Most Effective Treatments.
Dr. Liptan, I’m so happy to have you here and
looking forward to this interview.
Dr. Liptan:
Thank you. I’m happy to be here.
Dr. Murphree:
Hey. The first question, I’m just
going to throw it to you.
Dr. Liptan:
Okay.
Dr. Murphree:
Why is it that here we are in 2020,
and we still have so many doctors that don’t
acknowledge that fibromyalgia exists. I mean,
some still don’t believe that it is real. And those
that do really don’t know much about it. It’s
incredibly frustrating I know for my patients. I’m
sure for yours. Why do you think there’s such a
disconnect still?
Dr. Liptan:
I think about that every day because
I’m sure your clinic does like mine. I get calls
every day. Like, hey, do you know a doctor in
my area or anybody that can help me in Ireland,
Australia, and so frequently the answer is I don’t
know anybody locally that has any expertise
in fibromyalgia. So, I think it comes down to
two things. One is, for a long time, we did not
have objectives or measurable abnormalities
in fibromyalgia, and doctors have a really hard
time believing something they can’t see. So, if
it’s not going to show up on an MRI or a lab test,
most doctors, unfortunately, kind of veer to, well,
maybe it’s all in their heads.
So, if people are expressing pain or fatigue, but
it’s not something that a doctor can measure, I
think that is what the initial disconnect was. And it
wasn’t until 2002 that we finally had measurable
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2
abnormalities in those functional MRIs that
showed pain hypersensitivity. So, until 2002, no
measurable abnormalities. And the other thing
is it really primarily affects women. And I think
there’s been a huge—— I think that is part of
why fibromyalgia science is like 50-plus years
behind where we should be because for so long,
for about 50 years, women who were expressing
complaints of pain and fatigue were basically
just like, oh, it’s all in your head. You’re just tired.
You’re just depressed.
So, I think that’s kind of the two-fold factor. Not
having objective abnormalities for a long time
and then having this sort of the discrimination, I
think, against kind of the lack of believing women
and their complaints. And it’s 2020 now, so things
are better. I think a lot more doctors believe in
fibromyalgia, understand it, recognize that it’s
real, but we still don’t have a lot of doctors that
have a good understanding of the treatment.
And I think that’s where you and I, and like Dr.
Teitelbaum, we all have been trying to kind of
present like, hey, there are treatments. Here’s
what you need to do, but that hasn’t really seeped
into the general medical understanding. Like if
somebody goes to their primary care doctor, they
don’t know about the things that we recommend.
Dr. Murphree:
Well, you’re uniquely qualified
because being a female and then having the
illness yourself, you’ve been through that journey
where, as you related in your book, you felt like
you couldn’t say anything because you were
concerned as a female, I think. And the other is
an illness that a lot of people didn’t think even
existed.
Dr. Liptan:
Yeah. There was a huge stigma back
then. That was around 1999, 2000, when I was
dealing with fibromyalgia first. It was end of my
first year of medical school, and I felt this huge
sense of shame and stigma. Like I felt afraid
to tell my fellow colleagues about what I was
dealing with, and I didn’t want them to know I had
fibromyalgia because of that judgment. There
was a huge judgment, and I still feel like there
is. It’s lessened, but it’s still there. It’s still there.
And so, part of what I feel like my mission in life
is to really keep talking about my experience
and normalizing it for other doctors so that they
can see, hey, it does happen to everyone. It can
happen to a doctor.
Dr. Murphree:
Right. I think, unfortunately,
though, we were in a place in the fibromyalgia
community because I think doctors are well-
meaning, but so many times they get frustrated
because their treatments don’t work, and some
have a tendency to blame the patient. Oh, it
must be her because these are the protocols, the
Gabapentin, Cymbalta, and these other things.
If it doesn’t work, it must be the person. Maybe
they’re hypochondriac or just to——
Dr. Liptan:
Maybe they’re just not exercising like I
told them to.
Dr. Murphree:
And I think what’s kind of
saturated the fibromyalgia community is this
doom and gloom. You see it in support groups.
You see it throughout the community, and you
see it because doctors are really telling their
patients that you just have to learn to live with it,
and you and I would totally disagree with that.
Dr. Liptan:
Like that is not an acceptable answer
to me.
Dr. Murphree:
So let me ask you this. Can
fibromyalgia be cured? Sometimes it’s a hot
topic, hot question. Some people might be upset,
depending on your answer.
Dr. Liptan:
Yeah. All right. Well, wait to start me
out with the easy one there. No, I’m kidding.
So the way I look at it is at this point, I don’t
feel like there is a cure, meaning something
that completely eliminates all symptoms of
fibromyalgia. I do very strongly feel that there are
treatments that can give a 70% to 80% symptom
improvement, and to me and to everybody I know
with fibromyalgia, that would be deemed as a
cure. People say, if I can feel 70%, 80% better, get
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3
my life back, get back to working, even if I do still
have to deal with a little bit of fatigue or a little bit
of pain, that across the board, people say, I’ll take
it like that’s a cure. So I feel like if our expectation
is a hundred percent resolution, I don’t feel like
we have the treatments right now to do that.
I think we will. I think within five, ten years, we
really will have some good, better understanding
and better protocols and treatments. But right
now, I feel like a significant dramatic improvement
in symptoms is almost as good as a cure because
it can really allow you to live your life. Like I’m
able to work full time. I went through residency. I
probably work more than full time as you know,
running a practice it’s a lot of work. So to me, that
feels like a cure. But I don’t know that I would say
that fibromyalgia is curable yet, but we’ll get there.
Dr. Murphree:
So when I get that question, I get
it a lot.
Dr. Liptan:
Yeah. You answer it.
Dr. Murphree:
I just had to see what you were
going to say. Or should I say, my patients really
don’t care? They don’t care if we call it a cure. All
they care about is they get their life back as you
know, this illness just robs you. I mean, it robs you
of your health. It robs you of your social life, your
career, your intimacy, maybe with your spouse,
your family. I mean, it just robs you of everything.
And to be able to get your life back and yeah, my
patients who are concerned, the ones that are
successful, as long as they can get out and do the
things that they used to love to do, whether that’s
gardening or go back to work or just being able to
travel, that’s all they need. And I feel successful on
that.
Dr. Liptan:
Me too. That’s how I judge my success
as well.
Dr. Murphree:
If you look at the other option
for that is learn to live with it. I mean, who wants
to learn to live with chronic pain and being
exhausted? You barely get out of bed, and is this
going to be a good day? Is this going to be a bad
day? I don’t know if I can go do anything. I mean,
that’s not living. That’s not. So I meant to say this. I
really applaud you for everything that you’ve done
for the fibromyalgia community, have done and
are doing because we need people like yourself
that let people know you don’t have to learn to
live with it. What we want to do is empower you
to start to learn to take actions and do things
that you can start to reduce if nothing else,
some or most of the symptoms with strategies
that you developed, I’ve developed, we’ve stolen
from others. I mean, whatever we do to help our
patients.
Dr. Liptan:
Exactly. I completely agree. And I think
the challenges if people are relying completely on
their doctors to bring them that information, at
least your standard conventional doctor, people
are not going to get the help they need from
them. And it’s multi-factorial. Our healthcare
system is pretty broken. Your average doctor
sees a patient for what? Five, 10 minutes. So I tell
people you’re going to have to do some of the
work and research yourself and maybe bring that
information to your doctor or maybe seek out an
alternative type provider, somebody that’s trained
in functional medicine, somebody like yourself,
somebody that has that expanded viewpoint
because just that conventional, the conventional
medicine offerings for fibromyalgia are slim at
best.
Dr. Murphree:
Right. Okay. So what is
fibromyalgia? How do you describe that? You’re
in the elevator, and someone says, oh, you’re
a doctor. What kind of doctor? And you say, I
specialize in fibromyalgia, and they give you this
look like, oh, what is that? So how would you
describe fibromyalgia?
Dr. Liptan:
I see you’re familiar with that look.
Yes, I get that look a lot. Well, the short elevator
speech, as I say, it’s a condition of chronic
widespread muscle pain and fatigue that primarily
affects women, although we’re finding it more and
more in men. And then if you want the expanded
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